Weiß, H: Occupational Therapy in Epidermolysis bullosa

'Mann-Zeichen-Test'.-

5.3 Assessment results.-

5.4 Occupational therapy.-

5.4.1 OT intervention focusing on drawing and graphomotor skills.-

6 Independence in everyday life and provision of assistive devices.-

6.1 Assessment of children with EB.-

6.1.1 Parental questionnaire focusing on the coping skills of children with EB in everyday life.-

6.2 OT intervention focusing on everyday life and use of assistive devices.-

6.2.1 Self-care.-

6.2.2 Mobility / Locomotion.-

6.2.3 Leisure / Hobbies.-

6.2.4 Kindergarten (nursery) / School / Work.-

6.2.5 Barrier-free living.-

7 Client-directed therapy using the COSA.-

7.1 Client directed practice.-

7.2 What is COSA?.-

7.2.1 Contents and structure of COSA.-

7.3 Client-directed assessment and therapy for children with EB using the COSA.-

7.3.1 Additions to the 'Intended Meaning Reference Guide' for children with EB.-

7.3.2 Additional items for children with EB.-

7.3.3 Formulating goals.-

8 Rehabilitation of the hand.-

8.1 Pathophysiology of the hand.-

8.2 Contractures and deformities.-

8.2.1 Fingers.-

8.2.2 Thumb.-

8.2.3 Palm and arches of the hand.-

8.2.4 Wrist.-

8.2.5 Interdigital spaces.-

8.2.6 Causes of contractures and their relevance to daily life.-

8.2.7 Pathological changes to the joints due to contractures.-

8.3 Radiological changes.-

8.4 Surgical procedures.-

8.5 Occupational therapy process.-

8.6 Occupational therapy intervention.-

8.7 Occupational therapy assessment.-

8.7.1 Assessment form for the hand - using the AO neutral O-method.-

8.7.2 Assessment form for the hand - range of motion / sensibility / pain / grip forms / dexterity.-

8.7.3 Assessment form for the hand - longitudinal growth und pseudosyndactyly- 

8.7.4 Assessment form for the hand - abduction of the digits.-

8.8 Occupational therapy.-

8.8.1 Aims of intervention.-

8.8.2 Bandaging and compression gloves.-

8.8.3 Splinting for contracture prophylaxis.-

8.8.4 Types of splint for contracture prophylaxis.-

8.8.5 Exercises to prevent deformities.-

8.9 Post-operative occupational therapy after digital separation.-

8.9.1 Aims of treatment.-

8.9.2 Post-operative splinting.-

8.9.3 Post-operative problems.-

8.9.4 Assessment form for the hand - sensibility.-

8.9.5 Training of sensibility.-

8.9.6 Treatment of scars.-

8.9.7 Treatment of oedema.-

8.9.8 Manual therapy.-

8.9.9 Functional exercises after operative digital separation.-

8.9.10 Bandaging to prevent MCP flexion and ulnar deviation.-

9 Rehabilitation of the foot.-

9.1 The foot in people with DEB.-

9.2 Comparison of hand and foot.-

9.3 Anatomy and functional principles of the foot.-

9.3.1 The cuneiform principle.-

9.3.2 The spiral principle.-

9.3.3 The transverse arch.-

9.3.4 How DEB affects these principles.-

9.4 The pelvis and the axes of the legs.-

9.4.1 The pelvis.-

9.4.2 The axes of the legs.-

9.5 The development of the foot and the axes of the legs during growth.-

9.5.1 The new-born baby.-

9.5.2 The infant.-

9.5.3 The toddler.-

9.5.4 The school child.-

9.5.5 Considerations relating to the foot positions and leg axes in people with EB.-

9.6 Malpositions of the foot.-

9.6.1 Pes (talipes) valgus/varus.-

9.6.2 Fallen arches, pes planus (flat-foot), pes planovalgus.-

9.6.3 Pes excavatus (high-arched foot).-

9.6.4 Pes transversoplanus (splay foot).-

9.6.5 Considerations relating to the foot in people with DEB.-

9.7 Assessment.-

9.8 Exercises.-

9.8.1 Exercises for the perception of the feet.-

9.8.2 General functional exercises.-

9.8.3 Mobilisation.-

9.8.4 Functional exercises for the malpositions of the foot.-

9.8.5 Bandaging.-

10 Conclusion.-

Literature.